Fibromyalgia: Part II - What it feels like

so thats why I …
so thats why I smoke more when I'm in more pain.

It's not easy …
It's not easy living in the cold either. I'm miserable during the spring, fall and winter. I only feel better in the summer. The cold weather does tense the muscles which makes it much worse.

There needs to be …
There needs to be an island with the perfect climate for all of us hey? LOL We could all move there and live happy normal lives with people who understand and wouldn't judge us when we started to have normal lives again and went a little crazy just enjoying life we have been missing for yrs.

Hi ParanoidKitty, I …
Hi ParanoidKitty, I just wanted to tell you, Living in Florida with Fibro is hell. There are 6 months of intense heat with high humidity. That's even if it doesn't rain. These are the months I am in deep pain which causes me to get no sleep which in turn exacerbated the problem. I was trying to get my house ready to sell…needs work. The lazy A– won't help me. Then the housing market fell out. Want to move to a desert, New Mexico, Arizona, Nevada. The dryness will hurt less.

I know how that …
I know how that goes. I live in a place in Canada that we have some wicked storms in the summer and snow and waaaaaay below freezing and blizzards in the winter. Sometimes I don't get a break durring the year. The hot baths do well, as long as your body cools down a little before you step out. If you get out and its cold your body gets shocked and tenses up worse than it was! Luckily you live in Florida where it doesn't get cold cold. We are all guilty of doing things not recommended for relief.

I am in Florida. I …
I am in Florida. I know that rain and humidity bring it on, make it hurt more….however…everytime I soak in an extremely hot bath, I mean stay for 10 or longer….the pain is alleviated. I think it may be the heat gets deeper into the muscles than it would with a heating pad or electric blanket.
Like those of you who r smoking for help, I am sometimes drinking a little brandy. I am not a drinker. More than one glass makes me nauseaus. I'm just so desperate to relieve the Fibro pain.

We all know how …
We all know how that goes. I am glad you found us too. Nobody understands until you live it. The only way to get through to people is to act how you feel, but then you accomplish nothing and thats just a waste of life. Oprah needs to do a show about it, then most of everyone would hear about it or something. LOL

I am by no means …
I am by no means condoning smoking, however… when I don't smoke, as I have quit before, the pain is intolerable. Because of the carbon dioxide in the cigarettes which slows the blood flow, your muscles don't get the blood and CO2 they need to function properly. So its not a win win situation, but for me it's how I cope. I have a smoke and you can feel the pain slowly rush away. Not recomended, but until I can find something that works…

I was in a car …
I was in a car accident Feb 1999. MAR 99, it started w/ a diagnosis of costcochondritis then June 99, horrible migraines. Symptoms get worse each year & moving to wet Seattle, WA area is bad for FM. Your pain management is cigarettes? Haven't smoked in 13 years, but recently started craving it bad. Hmmm. Spouses think you're OK cause you "look OK" I freaked out one day cause house was messy (needed help) he said my coping skills weren't very good. What the hell??!!! Totally relate to yall.

HI trixiepooh, I …
HI trixiepooh, I like your name, LOL. I just posted on here. It sounds like yours. I am married to a man who thinks if there is no blood, no bruises, than I am not sick. He is being lazy, neglectful of my house and property. I can't even get it fixed to sell. The pain has been so bad, lasting severely for at least 3 days, that I thought of suicide. Then it gets better. I have noticed things that makes it hurt more than all else, humidity, stress, no sleep. I take brandy or hydrocodine.

I have fibro,RA, …
I have fibro,RA,Osteo,inherited two types of artheritis from my grandfather.
I am alone except for a neglectful husband who is noncompassionate, doesn't believe me. We live as roommates in opposite ends of the house. I work a very physically demanding job. He can't take care of all the bills or yard work. I can't afford a divorce.
I am so glad I found you all here. I have no one to talk to. Nobody cares. If I don't work, I lose my roof and my insurance.
At least you all believe it exists.

What you say is …
What you say is true, different treatments work for different people. The toughest part is finding what works for YOU specifically. Just because it works for someone else doesn't mean it will for you. It is frustrating not being able to do things, I have adapted MOST of what I do to do it with fibro. Some things I cannot do, so I have picked up new hobbies I am just as happy with, etc. Problem is, you have to be well enough to fight the fibro and say I want to have a life!

Hello, my mother …
Hello, my mother has fibro too. I am taking a traditional treatment with antidepressing drugs and other to sleep. She likes all the alternative treatments ( acupuncture, bach flower, homeopaty, massages, etc) and she is always trying to convince me of doing what she does. And i am always refusing her advices. I have to repeat and repeat that we are 2 different people and that we dont need to do the same treatment. i am tired of receiving advices, because i feel frustrated i cant do things. bye

The worst part I …
The worst part I think, aside from nobody believing or listening to you, is when things for other people for fibro and not for you. For me, it has been trial and error on what works for me. Thats why I made these videos to help a little with what has worked for me in hopes maybe it will work for others. I am working on looking for other things that I have tested that work as well. Hence why I have no more videos yet. Best of luck.

its real that the …
its real that the pain is constant, meds dont make me feel better. i am really angry at everyone because they dont understand that i am really feeling bad. and they cant understand that its something that happengs every f**cking day. its awful. lately i been having sore throat for more than 3 weeks, and now i think i may be part of the fibro too, cause i read some patients have throat pain too.i still cant believe i have this, i still cant believe this exists, and that nothing works against.

watch my videos …
watch my videos they will help you !

I can give you …
I can give you advice, but I would talk to your doctor. I am a bad who weened myself off my medication because I was nothing but a zombie on it, I made a choice not to stay in bed doped up. I find that you do have to be a bit active, nothing extreme otherwise yer gonna hurt yourself. As for the meds, I replaced those with only a few herbal remedies and eating better along with stretching. Its hard to get outta bed, but you have to push yourself sometimes.

Oh other thing is i …
Oh other thing is i am on strong medication etc i am on about 30 + tablets per day can you help me please thanks for the video info

Hello, I understand …
Hello, I understand where you coming from because i had this chonic pain i nearly kill myself because of it, but can i have your msn messager please, because this is new to me from yesterday but i had this problem about 8 years but getting wrost most of the time etc please help me thanks

I am sure you can …
I am sure you can tell by the comments left on this video, and my others that you are FAR from alone! =)

I have fibro & RA. …
I have fibro & RA. It has been SO validating to hear you & know I am not alone with all of the physical & emotional weight

It is true. Moving …
It is true. Moving does help. But it is really hard to do that when you are in so much pain. If I get a REALLY bad flare I do rest though.

That is one thing I …
That is one thing I can't stress enough, is that you have to get up out of bed and you will feel better. I made the mistake, as most people do, of lying in bed because of the pain. But it really does get better when you get up and move around a little. OMG yesss.. the rain, owies!

It has helped me a …
It has helped me a lot. I work full time and I am still really sore in the morning, but after I get up and get moving I usually feel better. Of course unless it rains!

Ooo yer lucky! I …
Ooo yer lucky! I have heard nothing but good about Lyrica. We don't have it here in Canada yet as far as I know.