April 5, 2009

Friendly Fibromyalgia Chats- October 2007

Hi. I'm Diana. I'm 38, and I have fibromyalgia. Folks say they find me "inspiring." Someone yesterday told me "I don't believe you have fibromyalgia." I guess I must be doing something right. I do have some crummy days with fibromyalgia, just like everyone else, but I have a lot of good days, too. I keep a written blog, (www.surfercouple.com), and a video blog, here on YouTube. I don't sell anything. My goal is simply to share information with other people who have fibromyalgia. I had …

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Tags: Fibromyalgia, Guai, Protocol

Filed under Fibromyalgia by John

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Comments on Friendly Fibromyalgia Chats- October 2007 »

April 5, 2009

ysabellabravetalk @ 5:33 pm

You rule.
You rule.

curlygirl1961 @ 5:33 pm

its so good to see …
its so good to see you pain free and looking happy! what a lovely cat, reminds me of my old cat pudsey, really friendly!

dianacwolf @ 5:33 pm

You know, bethatone …
You know, bethatone, that gives me an idea. I don't know if you have a webcam, but have you ever considered doing YouTube videos for guys with fibromyalgia? You could simply call it "Fibromyalgia Guys." As far as I know, there is very little support out there aimed specifically at men with fibro. Networking other fibro guys together could be hugely helpful for all of you. - Diana

dianacwolf @ 5:33 pm

Thank you! I'm so …
Thank you! I'm so glad it was helpful! I can imagine that men with fibromyalgia have a particularly difficult path, both in terms of finally being accurately diagnosed, and then dealing with the stigma of a disease people associate with women. One gentleman who belongs to our GuaiGroup support group said his doctor actually handed him a brochure that said: "Fibromyalgia- A Woman's Disease!" And, the doctor thought that he was being helplful! Uggghhh!

bethatonegirl @ 5:33 pm

I am 27 years old …
I am 27 years old and I am acutually one of the very few male patients that have fibro and must say that watching this makes me forget about the pain the comes in spurts.I also belive that cat's are very theraputeic for those who have fibro.Thank you for posting it is really helpful

Marymarybobeary @ 5:33 pm

I know this …
I know this alllllllll too well. Six back surgeries, Fibromyalgia and RA have really done a number on me ~ I am trying to get my life back & keep searching for things that may help. I want the things that you described….it's only a matter of figuring out how to get well. I'm sick of narcotics & pain patches & all the other crapola!!!

dianacwolf @ 5:33 pm

Now, now, now, my …
Now, now, now, my cats are actually fun, playful animals. We actually have two black cats, but they are so identical that even we have trouble telling them apart at times. With regards to killing myself, yes, in all honesty, there was a time in my life that my fibromyalgia was so severe that I was seriously depressed. Suicide is the #1 cause of death amongst people with fibromyalgia. It is the reason I spend so much time reaching out to folks with fibro. I hope to spread hope. :) - Diana

dianacwolf @ 5:33 pm

Mary- So glad you …
Mary- So glad you enjoyed it! I guess you don't appreciate what you have until it is gone. Gradually getting my health back has been a true joy, and made me appreciate the little things in life– like simply waking up without a headache, or being able to walk up a flight of stairs without stiffness. I guess that's the source of my joy. :) Thanks for writing. - Diana

Marymarybobeary @ 5:33 pm

Your enthusiasm and …
Your enthusiasm and sheer joy in this video made me smile.

I have a black cat too!! :)

dianacwolf @ 5:33 pm

Do you have …
Do you have fibromyalgia? If you have any questions regarding fibromyalgia, I would be happy to answer them. However, I'd have to ask that you refrain from using obscenities when posting. Otherwise, I'll have to block you, or mark you as a spammer. Thank you in advance for your cooperation. Thank you. - Diana

ruseriousfibro @ 5:33 pm

please keep rubbing …
please keep rubbing the pussy, its makes my fibro not so debilatating. i can use both hands. R u serious? jut kill yourself

mzkward1027 @ 5:33 pm

your videos are so …
your videos are so inspiring! i have it as well and im only 18 so…. to have somebody to sort of "look up to" in a way is nice… thanks for your videos!

dianacwolf @ 5:33 pm

No argument from me …
No argument from me. :) It is a very old and time honored form of healing. I would trust it over pill-pushing "modern" medicine any day. If I were to be stranded on a desert island, I would pick a DC over an MD in a heartbeat.

hiodr @ 5:33 pm

it is, of course, …
it is, of course, possible that some other factor has damaged your thyroid , however, it is still likely that nerve interference is the primary source of the trouble. you should be aware that not all "chiropractic" is the same- is focused on, or achieves the same goal.

dianacwolf @ 5:33 pm

I believe in …
I believe in chiropractic, and went for about 20 years. But, my fibro advanced to the point that my muscle spasms knocked my back out of adjustment again within 1 -3 hours. Short of having the chiropractor move in with me, it didn't make sense to get adjusted, since my locked-up muscles just yanked everything back out of place. I figured I needed to find out WHY my muscles were locking up. Solve the root cause. I do think chiropractic's a good thing, though. -D.

hiodr @ 5:33 pm

i suggest you seek …
i suggest you seek an hio method chiropractor.

dianacwolf @ 5:33 pm

OK, I was just …
OK, I was just watching my own video again, and my goodness I was full of energy on this day. I've actually had a lot more days like this one, as my fibro keeps getting better and better. And, just as a side note, my Sunday School kids DID reach their goal and fund that entire well for that village in Papua New Guinea. I'm so proud of my kids! Now, we're trying to think of a new project to tackle…

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