April 27, 2009
My Fibromyalgia
A little bit more about me and my fibromyalgia. Would like to hear about anything anyone has tried for relief or what gets them through tough times. Everyone has their own struggles, what gets you through?
Duration : 0:7:36
Filed under Fibromyalgia by John

Comments on My Fibromyalgia »
I too came down …
I too came down with FM after I broke my neck three years ago and had a spinal fusion, I never recovered from the pain that accident /surgery caused and suffer from sleeplessness, brain fog and muscle pain. I need to apply for disability too, as I've stopped going to work. This is so hard….
Guys Fibro and CFS …
Guys Fibro and CFS is caused by lack of stage 4 sleep, hormonal imbalances, infections, and vitamin and mineral deficiences.
I am going to make a video soon, because by addressing these issues I am getting better.
Scientology! Yeah …
Scientology! Yeah right! AND GIRL YOU CAN DIE like my sister who killed herself! Like myself I wanted to Die, Now I am trying organize and help each other with OUR unique PAIN. The Pain Patch WORKS! Put it on at night–SLEEP and the next day you will feel better. Search FIBRO MICHELLE
listen irle i hear …
listen irle i hear u ever thing u say is right im on meds now but im on my 3 x of ss. but ill keep fighting becouse i have not work senc o4hat god i have a goo husband im so gald my kids are all on thair own becouse i get yryed and when i have to lay down i have to and let alone lose a babby u poor thing
I'm so sorry about …
I'm so sorry about your loss. I have chronic fatigue syndrome.fibormyalga.
what about, STOP …
what about, STOP EATING THE MIC!!!
Ronnie…I had …
Ronnie…I had Fibro for many, many years.A few years ago I stumbled upon a natural cure. It is a simple, special diet. It doesn't cost anything and I have nothing to sell and worked like a miracle for me. I DO KNOW how painful Fibro is and how it disrupts your life but it doesn't have to! Would love to share this info with everyone but I am not sure how to send message directly to you on youtube.
I'd be happy to …
I'd be happy to talk to you. I have Lupus and Fibro AND Osteoarthritis. I'm at scottishwench1971 on Yahoo Messenger.
hey kq922, do you …
hey kq922, do you have Fibro???
cause it's not that easy!!! atleast my case i believe so for almost all fibro patients.
I don't work either and i'm trying to get disability. good luck and god bless you keep in touch!!!
Ronnie,
Hope …
Ronnie,
Hope things are going better for you. If you are looking for help, email me and I will introduce you to several others who have FM. They found something that is really working for them… They have their lives given back to them again. scott(at)questworx (dot)com.
go to a church of …
go to a church of scientology center and tell them your story and they just have some open mindness and try what they tell you to i promise if you have a open mind and do what you have to then you wont need any more drugs. please dont ingore what i say just because its scientology
Thanks for your …
Thanks for your video. I also have FM, which was triggered by stress. I hear what you're saying and it could be me saying the same things. IT's totally been a life changing thing. My pain only started 7 weeks ago, but immediately I knew something was not right. I'm a very healthy person, but I feel like my life has been stolen from me. I have refused all drugs so far and I'm treating it with vitamins, massage therapy, chiropratic care, etc. Stay strong girl!!
blessings to you!! -Heather
I've tried the …
I've tried the duragesic (fentanyl) it worked a little bit for a while but i was moved to morphine and vicodin…although i have lost the use of my legs at the moment b/c of insurance issues w the type of morphine i have been off both meds for 2 weeks (the morphine didnt cause the loss of leg use) You have to be proative and assertive in your treatment my neurologist treats my fibro he is awsome.. send me a message
you need to go off …
you need to go off all the drugs and go alternative treatment…you will work again trust me.
i'll pray for you, …
i'll pray for you, i also can relate to you i have fibro and psoriatic arthritis
i have FM for the …
i have FM for the 10 years and trust me it has been very fatihful to me…been there with me for each and every moment of that time. i just have let it be there and continued with my life (well, i tried and am trying).
hello am on the …
hello am on the Guaifensin protocol aswell i have been on it for 2 years next mounth i walk for 2 hours a day and i have had 200 pain free days since the treatment there is an diet that goes along with it and it eases fms pain so much u can get better i can help u
I have some good …
I have some good news…..5HTP, a natural supplement, along with high dose Vitamin D3 (2000 IU daily), along with magnesium, along with SamE (also known as TMG), and lots of guaifenesin (over the counter sold as Mucinex or at Costco as a cold remedy) work wonders. This routine gets rid of pain, and fatigue. Isn't that the worst part??? I have had fibromyalgia probably longer than I can remember, but it seemed to flare about 12 years ago. Let's beat this thing!!!
spread the word, …
spread the word, woman. Great job.
I hope everything …
I hope everything worked out for you. I live in chronic pain too. I miss my job and I worked hard to get there.
I hate thinking about it. Thank you for sharing such a personal part of your life.
did you get …
did you get feedback? I'm home with a flare-up now & may not be able to continue to work outside the home. thanks.
I met one person …
I met one person with this fibro I talked with her for 20min and she got better. best gift I could give to someone.. I wrote about this on the net jamespowelson. but she and 12 others are doing fine.
I have had this ' …
I have had this 'disease' since 92 - took until 97 to get diagnosed.. The hardest thing about it, besides the unrelenting pain, is the disbelief that some share.. Openly.. I am not nor have ever been lazy, and that hurt the most emotionally.. frankly - I want my life back, I want to work, to exercise like I use to, I want to be able to use my brain again and not 'fog' out.. We, with fibro, are locked in a body we didn't ask for, nor want..
Good luck with SS, took me until 2004 to qualify..
I have found some …
I have found some relief from Lyrica and Tramadol. I might recommend you viewing this protocol called the Guaifenesin protocol that can found on youtube. I am currently trying it now and it is progressing well. I'm in the middle of a flare up now so I'll get back with you. Good luck and good health to you in the furure.
Sincerely,
DrDarryl
Hello,
I just …
Hello,
I just viewed your video and I too suffur from fibromyalgia.
It's been about 5 years for me and as with you it totally changed my life. I'm in pain each and every day but may have a reprieved for a day or so every couple of weeks. I also used the pain patch as well as multiple narcotics. They only tempered the pain for a day or so but caused all of the side affects to include drowsiness and of course constipation.