April 28, 2009
Is there no end to the symptoms of Reactive Arthritis.?
I was diagnosed as having seronegative reactive arthritis last July. The initial flare caused me to be bedridden for three months and a spell in hospital. My specialist told me that most patients are recovered within 3-6 months. It caused swelling in most of my joints and a lot of pain. Along with a whole bucket full of other symptoms, mouth ulcers,conjunctivitis along with a nasty rash.Initially I had my knee's drained and was given steroid injections into some of my joints. I am currently taking Paracetamol & dihydracodiene for the pain, doesn't help much. Lansrapole, celexocib, methotrexate and folic acid, I have been taking these for nearly 10 months now and dont seem to be improving much. I still have swollen fingers,wrists, knees,ankles, I have terrible back, shoulder,elbow,ankle, knee pain, it has also left me with three deformed fingers. Just these last few weeks it has presented itself in the right side of my face and is very painful to try and eat, its usually just soup these days., My specialist says all he can do is to see how i am in 4 months time and go from there. I am in constant pain, sometimes I can't even manage to get out of bed. Has anyone else had this and recovered from it. Im only 37 with four active kids who have had to help me dress,bathe etc. For the last ten months it has taken over thier lives aswell. I've had to leave my job and this disease has completely threw my world into turmoil. Is there any hope, does anyone know of any home remedies I could try that may help. The only thing I have found makes me feel 'normal' again is when I go into hospital and they give me steroids on an I V, my Dr won't let me continue with this as its harmul to my liver/kidneys. Any words of advice would be gratefully recieved.
Hi, I have R.A. and lately have had alot more pain, and other symptoms I never had before; sharp pains in the face and neck… and neuropathy. Sometimes I can't stand to have anything touch my skin or wear shoes. I can certainly relate. Sounds like you may need help with your children. The state can send you a care-giver a few hrs. a day and they pay, so your kids can have time to be kids, and you can get better care. My mom takes dylodid for diabetic peripheral neuropathy and it works pretty well; its time released and less intense than morphine. I know diet plays a large part in R.A. Supposedly no night shade foods (potatoes, tomatoes, or peppers), add whole grains, no table sugar, decrease fats, less meats (I'm now a vegetarian), vitamins, No store bought desserts! Preservatives are bad, and prayer is always good! The Lord removed alot of things in my life (cigarettes etc), I know we must have diseases and such, but with children, maybe you can lessen the symptoms and improve your time with them, as well as your life in general. God bless you.
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Comments on Is there no end to the symptoms of Reactive Arthritis.? »
Hi, I have R.A. and lately have had alot more pain, and other symptoms I never had before; sharp pains in the face and neck… and neuropathy. Sometimes I can't stand to have anything touch my skin or wear shoes. I can certainly relate. Sounds like you may need help with your children. The state can send you a care-giver a few hrs. a day and they pay, so your kids can have time to be kids, and you can get better care. My mom takes dylodid for diabetic peripheral neuropathy and it works pretty well; its time released and less intense than morphine. I know diet plays a large part in R.A. Supposedly no night shade foods (potatoes, tomatoes, or peppers), add whole grains, no table sugar, decrease fats, less meats (I'm now a vegetarian), vitamins, No store bought desserts! Preservatives are bad, and prayer is always good! The Lord removed alot of things in my life (cigarettes etc), I know we must have diseases and such, but with children, maybe you can lessen the symptoms and improve your time with them, as well as your life in general. God bless you.
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I sympathasise with you, Susan. I was diagnosed with presumed reactive artyhritis last year then I was checked over for rheumatoid arthritis and am still being checked every few months. All blood tests have remained negative and I'v just had biopsies taken (yet again) during knee surgery. I can't offer you any remedies but I presume you are seeing a Rheumatologist in a good hospital Rheumatology department. If you can get, please ask for a second opinion at The Robert Jones and Agnes Hunt Orthopaedic Hospital in Gobowen, Oswestry, Shropshire. They have an excellent Rheumatology Department - your GP will be able to get details and refer you - patients attend fromall over the UK and beyond. Hope you feel better soon.
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